I am a 12 year old little girl that lives with sickle cell.
Sickle cell changes my normal, round red blood cells into cells shaped like crescent moons. Normal round blood cells move easily through our blood vessels, taking oxygen to every part of our bodies. My sickle cells sometimes gather together and block oxygen from getting to the most important parts of my body, like my lungs, blood and organs. I experience unimaginable pain when this happens.
Not only do I suffer from severe pain when my blood cells are blocked, but my disease will leave me with long-term damage to her organs, muscles and bones.
I know I will spend my life battling through pain, infections, and anemia due to sickle cell disease. I will spend many of nights in the hospital like I have since before I was 1 years old.
When I am not dealing with complications from my sickle cell. I love to hang with my older brother and sister. They do not have sickle cell disease like me but they do carry the trait. I love to ride horses and to have lots of playtime with my sister.
Jordin’s Journey is a team of family and friends that started by fundraising for a machine that was needed for sickle cell patients at CHOC Children's hospital. Jordin Jackson’s parents were made aware of this much needed machine in October 2011. At that time Jordin was hospitalized at CHOC, because of pneumonia and acute chest syndrome. Acute chest syndrome is caused when the sickle cells gather in the lungs. It is common in patients with sickle cell disease and is one of the most common causes of death in people with sickle cell.
Jordin’s Journey raised the funds needed to secure the machine in November of 2012, thanks to our amazing donors. The machine is now up and running in the CHOC lab.
We have now decided to become a non-profit and raise money for awareness and education of the disease. Please join Jordin and Jordin’s Journey, to secure a better treatment for all children suffering from sickle cell disease in Southern California.
Throughout the last 9 years of Jordin’s Journey through life, Jordin has relied on the warmth and care of the nurses and doctors at CHOC Children’s Hospital. CHOC is a children’s hospital that belongs to the Children’s Miracle Network of Hospitals (CMN Hospitals). CMN Hospitals is special non-profit organization working solely to help sick children raising funds for children's hospitals and medical research. CMN works mostly from donations that go directly to local hospitals.
Every year CMN chooses one child from each state to represent all of the CMN Hospitals in that State. It is our honor and joy to announce the 2016-2017 CMN Hospitals Champion for California, our very own Jordin Jackson. It has been nearly 10 years since CHOC Children’s patient has been chosen as a CMN Champion for California.
As a patient at a CHOC Children’s Hospital, Jordin has benefited so much CMN donations. From heat packs to help her cope with serious pain episodes to the blood and bladder scanners during her hospital admissions. As a CMN Champion, Jordin will be able to give back by taking every opportunity to educate and create awareness for all that CMN has to offer as well as personally show why donations are so important. Jordin and her family will also be able to create so much awareness for sickle cell by sharing Jordin’s story, which is a huge part of Jordin’s Journey.
What an honor for Jordin and her family? They have worked so hard with Jordin’s Journey to create awareness and raise funds for sickle cell and CHOC Children’s Hospital. Please keep Jordin in your thought and wishes as she continues her journey as a Children’s Miracle Network Hospital’s Champion for California. Make sure to follow us on Facebook and Instagram and journey with us. To learn more about CMN Hospitals and the champion program please visit https://giveamiracle.childrensmiraclenetworkhospitals.org/CHOCChildrens